{"id":11269,"date":"2024-05-27T21:39:11","date_gmt":"2024-05-27T21:39:11","guid":{"rendered":"https:\/\/wellspring.ca\/alberta\/?p=11269"},"modified":"2025-04-22T19:44:12","modified_gmt":"2025-04-22T19:44:12","slug":"des-smith-financial-costs-of-cancer","status":"publish","type":"post","link":"https:\/\/wellspring.ca\/alberta\/blog\/2024\/05\/27\/des-smith-financial-costs-of-cancer\/","title":{"rendered":"Des&#8217;s story: financial costs of cancer"},"content":{"rendered":"<p>Des Smith has an outlandish sense of humour\u2026 the kind that makes you laugh out loud even though it\u2019s totally inappropriate given the crushing details he\u2019s sharing about his life careening off course in his 50s.<\/p>\n<p>Life-threatening leukemia out of nowhere at age 53.<\/p>\n<p>A job lay-off due to the pandemic less than a year before illness.<\/p>\n<p>Mounting costs and no government funding.<\/p>\n<p>How is this man cracking jokes?<\/p>\n<p>\u201cI recently went to Vancouver to visit my 83-year-old mom and 96-year-old stepdad and guess what? We are on exactly the same schedule!\u201d cackles Des. \u201cGet up late, eat something, go back to bed. Get up again, go the bank, write a cheque, come home exhausted, take a nap. Get up, eat supper, go to bed. It\u2019s like I\u2019m in my 90s.\u201d<\/p>\n<p>After two and a half years of intense cancer treatment, Des is the first to say, he\u2019s lucky to be alive. Lucky seems like a stretch though, given the reality of his day-to-day challenges. Played out just by walking around the house, he\u2019s a far cry from the sports-minded computer draftsman he once was.<\/p>\n<p>\u201cIn 2022, I hit my \u2018lifetime dose of chemotherapy\u2019 and spent the better part of that year in bed,\u201d said Des. \u201cWhen you can\u2019t get up and keep moving, you lose all your muscle and bone mass. I went from 165 pounds to 120 \u2013 my Grade 8 body weight, only bald.\u201d<\/p>\n<p>Now, a few months post-treatment and considered \u2018in deep remission,\u2019 Des fits the government classification of someone who \u201cwill be able to return to work in any job in the future.\u201d This is how it\u2019s stated on Des\u2019s file.<\/p>\n<p>\u201cI know it\u2019s still early after treatment, but right now I can barely walk due to severe neuropathy, my brain is totally fried, and I can only stay awake for four hours a day,\u201d said Des. \u201cI would say as an employee I\u2019m pretty unreliable. I have energy one minute, then it evaporates. I\u2019m a total flake.\u201d<\/p>\n<p>What Des gets fired up about, is the fact that because his partner has a job with a health plan, he hasn\u2019t been able to qualify for any government funding, hence the pair have spent their entire retirement savings, and gone into debt to pay to stay afloat.<\/p>\n<p>\u201cAllison and I had just bought a small bungalow and moved in together after dating for a few years. Then Covid hit and I got laid off, and then I got sick. I was completely incapacitated. Allison had to take 10 months off work to look after me,\u201d said Des. \u201cFor a while we were down to one reduced salary, and even with her medical coverage, we still had to pay $700 a month for prescriptions, plus parking at hospital, and all the other extra things I needed.\u201d<\/p>\n<p>Basically, Des says they learned the hard way that there is no public funding for the average person with an average income who gets sick. \u201cYou either need to be totally destitute to qualify, or you need to be extremely rich so you can afford the costs of cancer yourself,\u201d said Des.<\/p>\n<h5><strong>Wellspring Lends a Hand<\/strong><\/h5>\n<p>Up until now, Des has had limited concentration and energy for Wellspring programs, but he says he is grateful Wellspring led him to the Alberta Cancer Exercise (ACE) program, which will help him to gradually rebuild his physical strength. Next month he will start taking Wellspring\u2019s Brain Fog program, with hopes of regaining some of his diminished cognition.<\/p>\n<p>\u201cAs a person facing cancer there are just so many things outside of medical that you need help with, and Wellspring is the only organization I know of that can help with those things. They do everything they can to help or direct you. If they don\u2019t have a program you need, or the answers you are looking, they will bend over backwards to help you find it,\u201d said Des.<\/p>\n<p>So far, the Wellspring program Des is most grateful for, is Money Matters.<\/p>\n<p>\u201cThis program is invaluable. [They] exhausted every possible avenue looking for funding for me, and [they] filled out all the forms \u2013 which was such a relief. When you are stressed and exhausted and taking all kinds of medication, you are clueless. Your brain literally fails to function,\u201d said Des. \u201cI couldn\u2019t have looked into any funding, or done any of the paperwork without Wellspring.\u201d<\/p>\n<p>Sadly, Des was not eligible for any financial support, putting added strain on his cancer recovery. [Read a recent report about cancer-related <a href=\"https:\/\/www.cmaj.ca\/content\/196\/9\/E297\">financial toxicity<\/a> affecting Canadians.]<\/p>\n<p>\u201cEven still, I feel very lucky and grateful. Everyone in my life has been supportive and fantastic,\u201d said Des. \u201cAllison always tries to be so positive. She just wants me to be well and if I can\u2019t work, she says we will just have to change our plan and find a new way forward. For now, I try to do small house chores in the few hours I\u2019m awake, and she just keeps working hard for both of us.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Des Smith has an outlandish sense of humour\u2026 the kind that makes you laugh out loud even though it\u2019s totally inappropriate given the crushing details he\u2019s sharing about his life careening off course in his 50s. Life-threatening leukemia out of nowhere at age 53. A job lay-off due to the pandemic less than a year [&hellip;]<\/p>\n","protected":false},"author":26,"featured_media":11270,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"location":[],"class_list":["post-11269","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-member-story"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Des&#039;s story: financial costs of cancer - Wellspring Alberta<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wellspring.ca\/alberta\/blog\/2024\/05\/27\/des-smith-financial-costs-of-cancer\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Des&#039;s story: financial costs of cancer - Wellspring Alberta\" \/>\n<meta property=\"og:description\" content=\"Des Smith has an outlandish sense of humour\u2026 the kind that makes you laugh out loud even though it\u2019s totally inappropriate given the crushing details he\u2019s sharing about his life careening off course in his 50s. 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