{"id":12507,"date":"2024-12-18T13:45:23","date_gmt":"2024-12-18T13:45:23","guid":{"rendered":"https:\/\/wellspring.ca\/alberta\/?p=12507"},"modified":"2025-03-12T17:17:52","modified_gmt":"2025-03-12T17:17:52","slug":"sara-path-to-stillness","status":"publish","type":"post","link":"https:\/\/wellspring.ca\/alberta\/blog\/2024\/12\/18\/sara-path-to-stillness\/","title":{"rendered":"Sara’s story: discovering creativity at Wellspring"},"content":{"rendered":"

A grinding halt<\/strong><\/h4>\n

At 35, Sara had a meaningful and fulfilling career, a committed relationship, and close connections with family and friends. She spent her time going to the theatre, playing board games, and serving on the board of directors for a Calgary music festival. She also enjoyed adventurous travel to new places, like a trip to Costa Rica in November 2022, where she saw sloths and monkeys in the wild, snorkeled off black sand shores, and ziplined above the forests.<\/p>\n

Just one week after returning home from Costa Rica, Sara was catching up on work in the office when she had a grand mal seizure that knocked her unconscious. She was taken to the hospital, where there were tests and scans, and then the jolting news, the flash that transported her to an entirely new reality.<\/p>\n

\u201cI was diagnosed with brain cancer \u2013 a rare type called oligodendroglioma,\u201d said Sara. \u201cI actually avoided learning the name of it at first, because I didn\u2019t want to be able to Google it. I knew I wouldn\u2019t be able to resist, and I didn\u2019t want to know how bad it was.”<\/p>\n

In the days that followed, Sara had a cluster of seizures in the hospital that left doctors scrambling to find just the right combination of drugs to curb the violent uncontrolled electrical currents that flooded her brain. Once the seizures ceased, Sara was partially paralyzed, relying on nurses, as well as her family and partner, for help with the most basic tasks, like showering, standing, and eventually taking hesitant steps with a walker.<\/p>\n

\u201cWhen I left the hospital, I was on three different anti-seizure medications, and very hopeful that the drugs had the seizures under control – that they were a one-off, and I wouldn\u2019t have another,\u201d she said.<\/p>\n

 <\/p>\n

At any moment<\/strong><\/h4>\n

But 39 days later, she did have another, and then another, and another \u2014 a total of seven over the months following her initial hospitalization. Each time, her medication dose was increased, or a new medication was added. It took eight months to find the right combination of medications \u2014 four different anti-seizure medications and 17 pills a day \u2014 to finally stop them.<\/p>\n

\u201cHaving seizures was terrifying. I tried desperately to see what was causing them, what led up to them, trying to connect the dots, but there was nothing that I could find. They could happen at any moment, so I was afraid all the time. It came to a point where I was scared to even say the word \u2014 referring to them instead as \u2018incidents\u2019 \u2014 because of a fear that simply speaking the word \u2018seizure\u2019 would trigger one,\u201d said Sara.<\/p>\n

Treatment commenced in March 2023, including six weeks of radiation (30 sessions in total), and 11 months of oral chemotherapy (60 doses in total). Sara\u2019s parents took her to all her radiation appointments, and her mom cooked her meals to ensure she was eating healthy food while struggling with side effects of treatment. Friends and family rallied around her, surrounding her with love and support.<\/p>\n

\u201cBecause of the cancer and the seizures, I was unable to work, drive, or even walk long distances. The isolation and the complete and sudden loss of my independence was really hard for me,\u201d she said. \u201cAmidst all of this, I was also trying to mentally and emotionally cope with the fact that I had an incurable disease. It was a very dark time.\u201d<\/p>\n

 <\/p>\n

Wellspring for <\/strong>t<\/strong>wo<\/strong><\/h4>\n

The day Sara and her mom walked through the doors of Wellspring\u2019s Carma House, Sara felt nervous and unsure. She had taken her time getting there, feeling she would know when the time was right to come out of her cocoon and be around others who also have cancer.<\/p>\n

\u201cAlmost as soon as we entered, I felt better. Everyone was so friendly and caring. We got a tour of Carma House and every employee and volunteer stopped what they were doing to say hi and welcome us,\u201d Sara said. \u201cIt felt like such a warm and wonderful place where the people were kind, there were comfortable chairs to curl up in, and there was always a new baked good in the kitchen to enjoy.\u201d<\/p>\n

In the weeks that followed, Sara and her mom both signed up for programs. Sara chose to take \u201cbaby steps,\u201d beginning with just one online program. Eventually she found she had many hours to fill between treatments and not working, so she began taking both online and in-person programs. When she felt totally at home and was enjoying the comfort and familiarity of Wellspring, she explored parts of herself she had never experienced, sampling such programs as Still Life Sketching, Self Portrait Painting, Art and Folded Books, and one of her favourites, Sketchy Creative Writing.<\/p>\n

\u201cAfter years of working in a professional environment, the feeling of having creativity in my life had slipped away, but at Wellspring I rediscovered my creative spirit. I tried things I never would have tried before,\u201d said Sara.<\/p>\n

Along with tapping her creative side, Sara sought educational enrichment, joining Brain Fog, Money Matters, Returning to Work, and Making a Plan with Cancer in Mind. She sampled Reiki, Drumming, and Sound Meditation, as well as Living Well with Cancer and Mindful Self Compassion. Her mom took caregiving programs, and the two signed up and took some programs together. The bond they had before cancer grew and blossomed \u2013 an unexpected gift of a tumultuous journey.<\/p>\n

One of the programs Sara highlighted is Money Matters. She found it extremely helpful, and said that based on its title, the program was not what she was expecting.<\/p>\n

\u201cAt first I thought Money Matters wasn\u2019t really for me because I thought it was about how to manage your finances. I didn\u2019t realize all the other ways this program can help you \u2013 especially in my case with accessing and relying on disability insurance,\u201d said Sara. \u201cThe Money Matters leader provided very clear guidance on how to communicate with my insurance company and my employer. This was so helpful. She even helped prepare me for a conversation with my insurance case manager.\u201d<\/p>\n

 <\/p>\n

Conquering the fear <\/strong>\u00a0<\/strong><\/h4>\n

Perhaps Sara\u2019s most impactful experience at Wellspring unfolded when she took a program that invites members to create a short film about a meaningful experience in their lives. The program, Digital Storytelling led by Melody Williamson, was a game changer for Sara in conquering her fear of seizures.<\/p>\n

\u201cWith Digital Storytelling, I went from not being able to even say the word, to creating an entire video about having seizures. I recreated the feeling of having a seizure through thunderstorms, eyes darting around in fear, and a dizzying staircase. Sitting at my computer, sifting through images, writing the script, and editing my voiceover, I really dug deep into it, which took away a lot of the fear. It was really very powerful,\u201d she said. [View Sara’s video]<\/a><\/p>\n

 <\/p>\n

Reclaiming an unfinished life<\/strong><\/h4>\n

\u201cAs I\u2019m coming up on the two-year anniversary of my diagnosis, I\u2019m aware that there are a lot of things I can\u2019t do because of cancer, but I\u2019ve been trying to focus on the things I can do, and I realized that a lot of the positive experiences I\u2019ve had are because of Wellspring. In fact, Wellspring has been so good to me, I consider myself a lifetime member.\u201c<\/p>\n

At Wellspring, we don\u2019t just sit around and talk about having cancer; we talk about the art we are working on, or the goals we\u2019re setting for the future, or other things going on in our lives. You find the kind of warm gentle support you need, and you get the opportunity to try new things you\u2019ve never done if you open yourself up to the experience,\u201d she said.<\/p>\n","protected":false},"excerpt":{"rendered":"

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