{"id":8159,"date":"2021-06-09T10:57:28","date_gmt":"2021-06-09T10:57:28","guid":{"rendered":"https:\/\/wellspring.ca\/alberta\/blog\/2021\/06\/09\/kerrie-gagne\/"},"modified":"2025-04-22T20:04:28","modified_gmt":"2025-04-22T20:04:28","slug":"kerrie-gagne","status":"publish","type":"post","link":"https:\/\/wellspring.ca\/alberta\/blog\/2021\/06\/09\/kerrie-gagne\/","title":{"rendered":"Kerrie&#8217;s story"},"content":{"rendered":"<ul>\n<li>\n\t\t\t\t\t\t\t\t\t\tJune 9, 2021\n\t\t\t\t\t\t\t\t<\/li>\n<li>\n\t\t\t\tLiving with Cancer Blog, Member Stories\n\t\t\t\t\t\t\t\t<\/li>\n<\/ul>\n<p><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/wellspring.ca\/ab-test\/wp-content\/uploads\/sites\/27\/2023\/06\/IMG_1656-768x1024-1.jpg\" alt=\"inline_938_https:\/\/wellspringalberta.ca\/wp-content\/uploads\/2021\/06\/IMG_1656-768x1024.jpg\" loading=\"lazy\"><\/p>\n<h3>By Kerrie Gagne<\/h3>\n<p>My name is Kerrie Gagne and at 48 years old, I am living with a rare, non-curable form of blood cancer called AL Cardiac Amyloidosis. This happens when an abnormal protein called amyloid builds up in organs and interferes with their normal function.&nbsp;In my case, my heart was severely damaged, resulting in the need for me to have an&nbsp;implantable cardioverter-defibrillator&nbsp;(ICD) to help my heart function. This type of disease is often hard to diagnose because it is extremely complex and the symptoms are often undetectable.<\/p>\n<p>The time and process leading to this diagnosis was a nightmare for me. First, I endured months of chronic pain, not having a clue what was wrong with me, and often struggling with people not believing the pain was real. Then learning that it&rsquo;s both cancer and heart related and it could be fatal, hit me like a freight train. What a ride it has been, especially during the pandemic!<\/p>\n<p>In Red Deer, where I reside, there are limited resources, which delayed a timely diagnosis. I had to go to Edmonton for a bone marrow biopsy, then to Calgary for a cardiac MRI, and finally specialists in both centres began piecing together all that has gone wrong with my health.<\/p>\n<p>In the meantime, there have been so many scary moments! For instance, at my bone marrow biopsy consult, I was told I could perish at any moment due to the deteriorated condition of my heart, so the race was on to figure out a treatment plan. It wasn&rsquo;t until months later, on February 10, 2021, that I was formally diagnosed and started targeted systemic chemotherapy injections two days later. &nbsp;At that time, it was still unclear to me that I had cancer.<\/p>\n<p>In March, I was feverishly searching the web for answers as to what I was dealing with, but information was scarce. Then, just as I was ready to give up, I saw a tweet from AHS about Wellspring Calgary offering an online program for patients and caregivers living with non-curable cancers. I felt an incredible rush of relief and hope that this might be the place for me to find resources and connections. I joined, even though my heart issues got worse and I had to miss some classes. I finally felt like I was not alone.<\/p>\n<p>At Wellspring, I feel connected to a community of people who really care; who feel like family. The staff, volunteers and other members listen, engage, share, and bring me back up when I am an emotional wreck &hellip; mentally and physically drained and discouraged. The resources and programs offered at Wellspring have given me a sense of grounding, healing, and hope. This has made a huge difference in my life, as I am virtually alone in this insanely difficult journey.<\/p>\n<p>I am still new to this support community, and have not even put a dent in the list of programs I want to take, but I am doing my best to get well so I can take full advantage of all that Wellspring has to offer.<\/p>\n<p>Wellspring has also helped give me purpose to my days, as I was invited to share my story and advocate for people like me struggling with cancer, coping with the pandemic, and trying to navigate the health system as a patient, especially in southern and northern Alberta and other rural areas where resources are limited.<\/p>\n<p>Now I feel passionate about helping inform and advocating for others, who, like me, are in the fight of their life. This gives me a silver lining and makes me think anything is possible. As long as I&rsquo;m here, I will try my best to live well, and when I can, I will show up for others.&nbsp;<\/p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>My name is Kerrie Gagne and at 48 years old, I am living with a rare, non-curable form of blood cancer called AL Cardiac Amyloidosis. This happens when an abnormal protein called amyloid builds up in organs and interferes with their normal function.<\/p>\n","protected":false},"author":1,"featured_media":8160,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"location":[],"class_list":["post-8159","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-member-story"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Kerrie&#039;s story - Wellspring Alberta<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wellspring.ca\/alberta\/blog\/2021\/06\/09\/kerrie-gagne\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Kerrie&#039;s story - Wellspring Alberta\" \/>\n<meta property=\"og:description\" content=\"My name is Kerrie Gagne and at 48 years old, I am living with a rare, non-curable form of blood cancer called AL Cardiac Amyloidosis. 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